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The Muscular Dystrophy Surveillance, Tracking, and Research Network (MD STARnet)
The purpose of this NOFO is to better understand the public health and clinical impacts of living with MD by conducting longitudinal, population-based surveillance and research of eligible MDs (DMD, BMD, DM, FSHD, LGMD, CMD, EDMD, OPMD, and Distal MD).
The current cycle will focus on identifying eligible MD cases, conducting longitudinal follow-up and research, analyzing data, and publishing and disseminating the results.
Current MD STARnet sites will collect data to estimate prevalence and survival and additional clinical data on existing MD cohorts.
New MD STARnet sites will focus on identifying eligible MD cases and collecting data to estimate prevalence, survival and track key clinical indicators.
Identification of cases through population-based surveillance will enable existing and new sites to conduct research on these populations.
This information is expected to advance understanding of diagnosed prevalence, disease progression and survival; clinical care and interventions and their alignment with recommended care; disparities in access to care; the association of treatment with outcomes, and the impact of MD on the lives of affected individuals and their families.
The current cycle will focus on identifying eligible MD cases, conducting longitudinal follow-up and research, analyzing data, and publishing and disseminating the results.
Current MD STARnet sites will collect data to estimate prevalence and survival and additional clinical data on existing MD cohorts.
New MD STARnet sites will focus on identifying eligible MD cases and collecting data to estimate prevalence, survival and track key clinical indicators.
Identification of cases through population-based surveillance will enable existing and new sites to conduct research on these populations.
This information is expected to advance understanding of diagnosed prevalence, disease progression and survival; clinical care and interventions and their alignment with recommended care; disparities in access to care; the association of treatment with outcomes, and the impact of MD on the lives of affected individuals and their families.
Related Programs
Rare Disorders: Research, Surveillance, Health Promotion, and Education
Department of Health and Human Services
Agency: Department of Health and Human Services
Office: Centers for Disease Control and Prevention - ERA
Estimated Funding: $16,250,000
Office: Centers for Disease Control and Prevention - ERA
Estimated Funding: $16,250,000
Who's Eligible
Obtain Full Opportunity Text:
www.Grants.gov
Additional Information of Eligibility:
For an applicant to be considered they must be responsive to the information here.
Component A – Core-Current: Applicants must document current funding under RFA DD-14-001 Surveillance and Research of Muscular Dystrophies and Neuromuscular Disorders.
Component B – Core-New: Applicants must propose a study site that should be a specific geographic area with a population of at least 3 million people including a large minority population (e.g.
African American, Asian, or Hispanic).
Component C – Enhanced-Dissemination: Applicants must submit an application for Component A to apply for Component C.
To be funded for Component C, the applicant must also be funded for Component A.
Applicants should document that they have applied for Component A.
Component D – Enhanced-DCC: Applicants must submit an application for Component A or B to apply for Component D.
To be funded for Component D, the applicant must also be funded for Component A or B.
Applicants should document that they have applied for Component A or B.
Component E – Enhanced-Abstractor: Applicants must submit an application for Component A to apply for Component E.
To be funded for Component E, the applicant must also be funded for Component A.
Applicants should document that they have applied for Component A.
If your application is incomplete or non-responsive to the special eligibility requirements listed in this section, it will not enter the review process.
Full Opportunity Web Address:
http://www.Grants.gov
Contact:
Agency Email Description:
Grants Policy
Agency Email:
Date Posted:
2018-12-07
Application Due Date:
Archive Date:
2019-03-15
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